Contemplating Our Raven's Reality...

....well, it isn't a nice one. Constant wind pain, bloats that rival most pregnancy bellies (relatively speaking), and now he's started pooing his pants again. At this stage, Andrew and I decided we are totally unhappy with the medication he's been given (parafin wax) from our paeditrician, and stop it and decided to research it.

This is what we find. From the Royal Children's Hospital (Melbourne) Only give such medications as a final resort. To begin with ensure they have plenty to drink, and give prune juice (mixed with other juice to make it taste better), eat at least two pieces of fruit (he's offered but we don't push it) and add into it good breakfast cereals with lots of fibre. We do have these on offer to him everyday, unfortunately, he just refuses most meals and drinks. So we are going to attempt to try and get him to eat these things every day somehow and have lots more to drink. If this does not work we are going to take him off dairy and gluten. Waiting for this deadline in September is ridiculous, he's in pain and he needs something real now.

Dante already drinks loads of water and eats OK. He is suffering too, though, so he obviously needs to address what's happening in his body. He's mostly lethargy, pallor, dark circles, bouts of the big D, occasional constipation, bloating, wind pain, brain fogs....

Andrew was actually the one to come to the party on this one, he researched the RCH stuff. This was after he said, "let's just put him on a gluten free diet and see if he improves." We will do this if the above tactics don't bring the desired results within several weeks. We are also considering going on a fully asian diet, which will be both healthy and cheap! I will miss the variety we've come to enjoy though... and our pizza nights and our Gluten Free Goodness ... and Quinoa grains etc.... Umm mostly Asian? We'll we will look into the results over the next few weeks with great interest. Q.

The Horrid Happenings of the 6th of July

Today we had to take Raven to the hospital first thing in the morning for more blood tests/stool samples...
Well, naturally they kept us waiting for nearly two hours while "something unexpected was happening in the treatment room." Eventurally after some pestering they agreed to take him into the quieter 'children's waiting room' to do the test. All this time he was anxious and upset because he remembered how they bled him last time (pushing the blood out his veins because "he just wasn't a good bleeder."
I asked him if he wanted mum or dad to take him in to hold his hand? He asked for me... well, long, tiring, stress filled 10 minuted was never to be had by anyone (OK but it wasn't very nice)... while I and two nurses restrained him they gave him a 'finger prick blood test' and took out about thirty drops (plus all the ones the nurses wore) as he thrashed around shouting 'stop, just stop" whilst the nurses pushed blood out of his finger over and over again. Even my diabetic mother who does the finger prick blood test 3 times a day said that was cruel, one prick hurts enough but to continue to push blood out?
Needless to say he wouldn't co-operate with other sampling and tests, and we still have to get that stool sample into them ASAP (I'm writing this on the tail end of his birthday).
I asked them why the finger prick test, they said it normally was done for tests to do with muscles mostly, then later volunteered it also is used to study certain enzymes. I am in the dark as to what they are searching for here.... I'm really concerned now.
Dante is still waiting to hear back about his stool sample, but they haven't failed to send us a bill for it.
And so the anxious wait goes on...