Thursday, June 25, 2009

Raven and Dante, a bit of Labyrinth

Just a small post here.
I'm so annoyed at our GP, it took about 18 months from when he decided Raven needed observation and yesterday's phone call from the Paed at the hospital. He's tested a strong positive to an autoimmune disease. He's needing to do more tests to get an exact diagnosis. This is all under the month we finally got in to see him and all the screwing around GP did before referring him. Obviously suspecting Coeliac's Disease, I certainly don't want him to have something worse and yes, came as a shock.

I was expecting it, but it still comes as a complete shock. It totally meant I couldn't concentrate on the lessons I was currently doing with the children, I was really upset.

I'm annoyed at my GP for wasting time with Raven... I'm more annoyed about how he's handling Dante. He said to us if he's still got the big D after settling down after Flagyl, he'd get the blood screening tests done for Coeliacs. Dante is bleeding from the bottom and he tells us he wants to put him onto another form of antibiotics, he's just not sure which ones and he might have an answer next week and he doesn't want to the do the blood tests til after that.

I know and see how Dante is suffering. He's lost a whole lot of weight it's frightening. He's started to avoid eating. He has black circles under his eyes and he appears pale often. This is not right, and the advice I've recieved from other people is go to another GP and fast! I'm swayed. I wonder if I can sway Andrew too, he's already annoyed about the way he's handled my anti-depressant/forced weaning. Neither Monika and I are ready, but he is trying to push me to stop. I've decided not to on the grounds neither of us want to, and I'd rather go off anti-depressants than give up breastfeeding just because my GP finds it unnatural and unnecessary.

Then there is Labyrinth. She's begun to see a psychiatrist for her behavioural issues. He's only taken her background so far, but through the extensive research I've found on the net, it seems she could have coeliac disease too, just manifesting it completely differently and without the gastrointestinal symptoms. The ones that fit are: pyschosocial underdevelopment, her insatiable appetite, fatigue, depression, frustration, low self esteem, anger, academic problems. Obviously it could be pointing to another problem entirely, but its hard to know at this stage, the psychiatrist seems pretty good and he is aware that I believe it may be organic in origin.

As for myself, no change. I've got the flu but that's about it. Brain fogs and memory problems plague my life.

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